Wednesday, November 21, 2007
Fall Leaves and Crazy Brothers
Monday, November 12, 2007
Update....good news!
Whew. And it's only the beginning of November!
I am waiting to hear what the pulmonologist has to say when we go on 11-21. Hopefully he will have some answers or at least a game plan to get us through the winter months. For now I am happy Eli is on the upswing of this disaster and that we got by without a long hospitalization. I am definitely going to go lay down and relax while the boys nap since Carson brought me home a cold Thursday and I even missed work yesterday because of it! Thanks for keeping tabs on our sick little man. I have fun pictures to post of Eli with a giant snake around his neck soon. Just let me get some R&R first.
Friday, November 09, 2007
Not much improvement
Tonight his fever is 102.9 and his lung sounds are a mix of crackles and wheezes. He hasn't eaten today except for a few small bites of fruit (his fav) tonight after dinner. Bedtime was at 5:30 and Eli hit the sheets hard and hasn't stirred since. I am hoping he turns the corner tonight and will sound better in the a.m. but my nurse/mommy instincts are telling me to go ahead and pack our hospital bags tonight. I work all weekend but Al is off but at least I work at Children's Hospital where he will be. Please keep us in your thoughts so we can stay out of the hospital and kick this pneumonia's butt. I hate seeing my happy, crazy boy without energy and a bad 'tude.
I will try to update tomorrow night on our progress and whether the antibiotics/steriods finally kicked in. Thanks for all the well wishes and comments. You guys are the best.
Tuesday, November 06, 2007
Pneumonia
Sunday, October 21, 2007
New Family Members
Carson:
* obsessed with drawing and coloring (and quite good at it too)
* going to be the ring bearer in Uncle Aaron's wedding 10/27
* growing like crazy
* eating us out of house and home
* had his 1st post-tube ear infection and it was YUCKY
* has a new best friend at school
* also has a new girlfriend at school....quite serious ;)
Elias:
* doing fabulous in school
* talking up a storm all day, every day...must get it from his mama
* getting taller
* maintaining weight (maybe even gaining a little!!)
* on round 4 of steroids in the past 8 weeks :(
* lungs not so hot
* upper GI was inconclusive for fundo...possible need for a re-do
* impedance study to be done in the next two weeks
* mommy and daddy seeing massive signs of reflux back (coughing all night, retching, yucky reflux face at night, increase in lung issues....all BAD)
Now on to the newest members of the family. Today we took Carson and Eli to get pet rats. They each picked out their own. Carson chose an all white one with reddish-orange eyes. He named her "Snow". Eli wanted a smokey gray one with a white belly. At first he said she would be called Dusty but then Carson and Daddy said she looked like a storm cloud and Eli shouted, "Storm, Dusty Storm". So, Eli's rat is now "Storm". Rats are wonderful pets. Very clean and smart. They are much heartier than hamsters. They don't stink like hamsters, gerbils, or guinea pigs. You can also teach them tricks! I had many rats as pets growing up and loved them all. Our beloved dog Macy took some time convincing when we arrived home with our two new companions but the dog treats we brought her at the pet store quickly convinced her the rats were okay. Here are some pics of our new friends, Storm and Snow.
Sunday, September 23, 2007
F-A-S-T
Fast: F-A-S-T, Vomit: V-O-M-I-T, and Fever: F-E-V-E-R.

As you can see, it was a fun day here at our house. Carson started puking after his nap and stopped by bedtime but it came fast and hard. We probably topped out at over 20 times in those short hours. Our floors have now been scrubbed three times in the kitchen AND bathroom along with the couch cushion covers washed, two blankets, three pillow cases, and many pairs of pjs. I have to thank Al for doing all the laundry because after all of that puking and taking care of a sick Carson, mommy needed a break!
This morning things were back to normal and Eli decided to start retching and so we had to let him vomit out of his g-tube for about an hour. That's the problem with a fundo, stomach bugs can really be an ugly sight. Everyone is back to being healthy and smelling clean tonight without fevers. Unfortunately a nice semi-croupy cough seems to be peaking it's ugly head out with both boys.
Eli needs to stay healthy because he will be admitted on Wednesday and Thursday to Childrens for a bronch, lung wash, and probable pH probe and endoscopy. Keep your fingers crossed that his lungs stay healthy enough to get these tests done. The little stinker is getting rather skinny (you will see in the new pics of him in his big boy underwear) due to the picky eating habits he has developed lately. Eli is making huge gains intellectually where he is falling short physically so we are happy to see that his brain isn't suffering AT ALL! He talks in 6-8 word sentences and loves to tease poor Carson. He is potty trained during the day with only a few accidents a week (maybe 1-2 peed pants). Once this boy has his mind set on something, there is no turning him back....he wanted big boy underwear so he got them! Now if we could just get the physical/medical stuff figured out, he would be all set.

Enjoy the new pics. I will try to update before we go into the hospital on Wednesday but I work a 12 hour shift tomorrow and an 8 hour one Tuesday so time may be short. If I can't get an update in, I'll post when we're in the hospital.
Monday, September 17, 2007
Eli "On the BUS!"
Today was our baby's very first day of school. Eli was excited all weekend about going to school and riding the bus. He told everyone he saw about "the bus" and his teacher Mrs. Catie. This morning when we woke up at 6:15 he was a different child. Gone was the happy, smiley Eli and instead there was a straight-faced, sleepy Eli. This wasn't entirely surprising since Eli doesn't usually wake up before 8 unless Carson wakes him up but it still made me more uncomfortable putting him on a strange bus to a new school. Last year when we sent Carson to school at 3 years old I thought it was hard and scary but it didn't compare to my feelings this morning. Putting Eli at 2 years old on a bus for an hour each way to a school full of new and unfamiliar things made me feel like the worst mommy of the year. As I pulled out of the driveway and off to work I couldn't stop thinking that he would be crying and not know where he was or why mommy and daddy left him. Thankfully my fears were unfounded.
Eli was dropped off at 12:45 and Al said he was ALL SMILES!! He won't stop talking about *the bus* and how it goes "honk, honk". School was fun and full of kids and playtime and snack! He peed in the potty once at school and was super proud of himself to top it all off. Mommy is officially relieved (for today anyway!). Now if I can just get used to sending my two and four year olds off to school on their respective BUSES, things at our household will be great. One day down, 16 years to go!
Sunday, September 09, 2007
Off to work I go....
Thursday, September 06, 2007
Back to School
And here he is on Tuesday looking quite BIG and GROWN UP!
Saturday, September 01, 2007
Season Opener

So much for pre-season rankings ;) It was the first ever loss of a nationally ranked team to a I-AA team. Way to make history Wolverines.


Thursday, August 30, 2007
Sharing
That's right. Yesterday it started with a terrible sore throat and has progressed to a lovely combination of stuffy/runny nose, sneezing, coughing, crappiness that I wish the boys would have fought over themselves. Of course they are both on the upswing of this delightful little bug after another round of our good friend Mr. Steroid. Eli even won a four day vacation with his other special friend, Mr. Antibiotic.
At least mommy can be comforted by the fact that her all time favorite season of the year started tonight and she now can celebrate the start of College Football!! Bring on the games because I've been deprived since January from the best damn sport in the land. Of course as a loyal and true Ohioan, I will be cheering on The Ohio State Buckeyes. Don't worry....we already have our jerseys and scarlet and grey all set for Saturday! Go Bucks!
Monday, August 27, 2007
Officially an RN
I passed! I'm officially a Registered Nurse! This is a time to celebrate for me but also a time to sweat a bit too. Now everything is on me. I'm no longer a nursing student who is learning the skills of nursing without a license. I am a professional with a license and everything that goes along with it. It is liberating and frightening all at once.
Two weeks from today I begin orientation at Children's Hospital. My dream of becoming a NICU nurse has come true after years of hard work. Now that August is ending it seems odd to not be meticulously organizing my notebook for next quarter and staining pages of $300 textbooks with bright yellow highlighters. The next step is here and I can't wait to jump in feet first.
Thursday, August 23, 2007
172,800 seconds is such a L-O-N-G time
Completed.
In the history books.
The computer shut off at 75 questions. After a surprisingly quick 50-ish minutes.
All of the studying, years of school, clinicals, student loans, hands-on experience, blood, sweat, and tears was over before I knew it. My NCLEX was not the end of the world. I didn't spontaneously combust. My hands didn't turn into pools of liquid jelly. My heart stayed within the confines of my ribcage. And my brain didn't decide to completely blank out at the most inconvenient of times.
What did happen you ask?
Time stopped. The second that computer screen went blank and my knowledge on how to safely and effectively care for a variety of patients at the level of a registered nurse was over, the clock seemed to stop completely. In Ohio the NCSBN says it should take approximately 48 hours to post the results of the NCLEX-RN. 2,880 minutes. 172,800 seconds. Approximately, of course!
So, even though my confidence in my performance was through the roof during the exam and I breezed through the questions, my post-exam anxiety will exponentially grow the closer and closer it gets to Saturday morning. I may spontaneously combust, turn to liquid jelly, or forget everything I know. Or just painfully review each and every question and answer from those 50 minutes this morning. And my BAC may remain elevated through the next 48-72 hours as well ;)
Tuesday, August 21, 2007
A Simple Question
As a parent of a micropreemie who is doing well for a 25 weeker and a 30 weeker with ADHD and sensory issues, I often am caught trying to find the *right* answer. Often it depends on the person asking, as many of Stacy's commenters will write. Doctors and therapists get the whole, fought-my-butt-off-to-be-here truth. Caregivers get all the important information. Friends somewhere in between. And strangers, a wide variety. I find that my medication background and nursing degree sometimes hurt me in this area because I am much more likely to give the TMI or Too Much Information reply. My brain is wired to medical knowledge.......I forget that not everyone else is set to that mode. This doesn't dismiss the fact that these questions do get asked and will continue to need answered for many years to come for both Carson and Elias. The goal is to get the answers down to a science.
One of the commenters, Chris wrote: "When a parent faces off with this question, s/he may learn that they are still quite traumatized by their child's disabilities. I think this is often evident in the need to spill one's guts, to retell the story, giving colorful detail. To me this means that we aren't over it. And I think some listeners say "Whoa!" meaning TMI (too much information)."
Stacy responded with this, "After reading what Chris had written, I started to think about the times when I've given strangers the full version of Paige's birth story. I've come to the conclusion that Chris is correct. There have been times when I have told the story because I was truly not over it. There are days when that is still true.
The other side of the coin is I feel the need to tell people about Paige's prematurity in hopes they will understand (and sympathize) why Paige is so socially different. When she acts inappropriately, I feel the need to make people understand the reason behind it. I think it's especially hard because Paige appears normal because of her large vocabulary. So, when she acts odd compared to her peers, I am brought back to reality."
Stacy echos my thoughts so closely when trying to determine how to respond to questions about Carson's behavior. I think the behavior aspects of long-term prematurity impact are often times judged more and questioned verbally less than the more visually obvious physical impairments. This often causes parents of preemies with social and behavioral disabilities to jump the gun a bit explaining their child's actions. I find myself doing it in public with Carson and then looking back and questioning why I felt the need to tell the lady at the park why. His amazing vocabulary and advanced speech in addition to being the height of a six-year-old make people think Carson is much older than his four years.
So, what is the correct answer? Stacy's reply fits how I often feel, but is that the best for all involved? I can't answer that right now but it was comforting to find another parent with the same emotions and thought process involved. Thanks Stacy.
Monday, August 20, 2007
The Bear
Mandy: "I've decided when I get married, you are going to be the ring bearer in my wedding Carson."
Carson: "Mandy, I am not a bear. I am a kid. Does it look like I have four legs all in a row and one head?"
Sunday, August 19, 2007
No.1 vs. No.2


What happens when your overzealous 4-year-old with an empty glass root beer bottle decides that his 2-year-old little brother has taken his movie watching seat?
On the way to the ER

All better after 3 Stitches!
Eli was such a brave little boy in the ER. He never cried or squirmed or fussed. The suture tech was quite impressed at how calm he stayed throughout the stitches. The whole time Eli was chatting him up with info about his favorite trucks along with the noises they each make. I thought Eli was going to give him a giant hug when the suture tech told Eli that his other job was driving giant firetrucks! That made our night and from that point on Eli only talked about the "nice boy who drives firetrucks". The sutures will dissolve in 5-7 days. Too bad we can't get his hair or head wet AT ALL until then and Eli has to go around looking like a cute little girl with curly hair and a barrette. They want us to keep his hair clipped back until his head lac is closed in 5 days so we are now the proud parents of Elietta.
Wednesday, August 15, 2007
Oxygen Free and Home!
Yesterday he had two tests done to look for abnormalities in his airway structure (video airway fluoroscopy) and aspiration (video swallow study). The airway fluoro was GREAT and showed no abnormalities. This means that Eli's raspy voice and horseness is most likely not from tracheomalacia, laryngomalacia, or a stenosis. Casron has mild tracheal stenosis so we were hoping Eli didn't. Unfortunately the swallow study didn't go as well. First of all, any of you that have a two year old know that getting them to do what you want, when you want it is nearly impossible. Eli was being a typical toddler and his own stubborn onry self. We did get him to drink about 6 swallows of strawberry flavored barium out of a straw cup and 2-3 out of and open cup....the sippy cup was unsuccessful. While Eli did not show massive aspiration in any of these swallows, he did have a ton of pentatration and micro-aspiration on every one. This means that he is still aspirating at least at a micro level ALL the time, and most likely at a larger level in the evening when we witness his coughing/wheezing symptoms. We are now back to thickening on everything which is going to be so much for for Eli.
They also want Eli to have another 24 hour pH probe. pH probe you say? Yes....you are thinking correctly when your mind goes straight to GERD/reflux and then to the fact that Eli had a Nissen fundoplication done in May of 2006. He isn't supposed to be refluxing and aspirating the reflux AT ALL. GGRRRRRR. They think that some of Eli's symptoms could also be the GERD coming back and him aspirating at night causing the raspy voice and further lung damage! I could just cry. We almost lost Eli after his fundo surgery last summer and I will be devastated if he is having the same problems again. So, for now we are back on a large dose of Prevacid until the pH probe is scheduled.
Eli will also be having a bronch to see how extensive his BPD damage is and how much of his damage is being caused by his aspiration. They will also do a lung wash during the bronch to look for positive signs of aspiration. The pulmo said he can clearly hear the thickening of Eli's lungs and inflammation so he wants to get in there and check it out. Flovent up to 2 puffs of 110mcg BID. Fun times.
But.....to end this post, Eli is still the smiling, happy, flirting, curly-headed boy who we took to the ER on Saturday evening. He charmed the pants off the medical staff. They were amazed at his developmental progress. One doctor even asked if she had the right room when she met Eli because from the outside he looks so darn good for a 25-weeker. We were proud parents bragging about his abilities to count to 14, know all of his animal sounds, speak in sentences, etc. It was great to have them acknoledge all of our (and Eli's) hard work to get him to the place he is now. We are truly blessed to have our little man doing so well :) Check out the pictures in the next post to see his hospital stay.....
Hospital Pics
Monday, August 13, 2007
Hospitalization # ?
Friday, August 10, 2007
Touch-A-Truck
Thursday, August 09, 2007
"Mommy, I'm Stuck!"

Yesterday Eli decided he would have a battle with the strawberry jelly container. Unfortunately the jelly lid turned out to be somewhat of a trap. A confused little Eli came walking into the living room with the entire squeezable jelly container hanging off of his right index finger. His raspy voice managed a calm, "Mommy, I'm stuck" that invoked my heart to jump right out of my chest. After unscrewing the jelly portion from the attached lid I went to work. Many attempts later with soap, pam cooking spray, butter, and lotion, the stubborn finger was just too swollen to slide back out of the lid. By this time he was loosing color and temperature in his finger and so we were off to the ER.
Too bad my keys were in Al's car with him at work!
Thankfully my parents came to the rescue and were at my door in five minutes. Traffic was a nightmare due to a concert and so my dad decided to take Eli back to his house and try to cut it off. An exacto knife and two pairs of pliars along with a talented BobPop (that is what Eli calls my dad) finally broke through the plastic lid and freed Eli's finger. Our little guy was so calm and quiet through the whole thing. He never cried once and was perfectly still. When my dad was all done Eli just looked at him and said, "Thank you BobPop, I'm all better." Color and temp started to return to his finger and it was almost back to normal in twenty minutes.
Leave it to Eli to find another reason to go to the hospital. I think he just missed the place because we haven't been there for an emergency since the middle of May (thank God!).
I need to thank my parents along with my trusty beverage of choice for getting me through another "boys will be boys" moment in Kellie history!



Sunday, August 05, 2007
"Honk, honk!"
When Carson arrived home after a week of vacation he decided to share his new found trick with Eli. Now I have two toe-headed little boys constantly yelling, "Honk, honk!" everywhere we go. They have toy 18-wheelers and insist on watching the truck DVD at least twice a week. Tonight for my viewing pleasure, the truck movie was the show of choice eagerly shouted accross the room when I asked what movie they would like to watch before bedtime. Instead of soaking up all of the quality songs and valuable facts about 18-wheelers and CB radio language, I decided to snap some pics of my two truck-obsessed kiddos indulging their pleasure.
Enjoy!
" Thanks Mom, You're the BEST!"
Moment of intense concentration
"HONK, HONK!!!"
Saturday, August 04, 2007
My Beach Boys
Carson and Eli were ready to come back to home after nine days of vacation but Carson is already talking about the next time that we go to the beach. It went too fast but being able to see my two boys enjoy themselves to the fullest and get to be normal kids without having to worry about PT/OT/Speech and countless doctors appointments was such a blessing. The only person at the beach who said anything about Eli's MIC-key button was a six year old little girl who wanted to know what it was. I can't wait for our trip to the beach next year so I can see how much they have grown.
See the next post for beach pics!!!
Thursday, August 02, 2007
I've been tagged!
I have to post these rules before I give you the facts:
1. Each player starts with eight random facts/habits about themselves.
2. People who are tagged need to write in their own blog (about their eight things) and post these rules.
3. At the end of your blog, you need to choose eight people to get tagged and list their names.
Okay, here goes....
1.) I am a terrible procrastinator (if you have been *reading* my blog the past few months you already know this). In college I would wait until hours before a large paper was due to start writing it, then stay up all night working and still get an A. It is my downfall.
2.) During the fall I am an avid college football fan. I watch SportsCenter religiously and every game I can fit into my schedule. The best team in the country is always the OHIO STATE BUCKEYES no matter where they fall in the rankings. Don't argue.
3.) I am glad I have two boys. As a tomboy at heart, raising girls would have been a bit tricky.
4.) My inseam is 36". Try finding inexpensive jeans or dress pants with legs that long!
5.) I am adopted.
6.) Since the age of five I have been plagued by migraines.
7.) Ice cream is my weakness.....any flavor, any time :)
8.) Life would be perfect for me if mommies had nap time too. I love a good nap and on most days with the boys, I could use one!
Okay....almost everyone has done this meme since I was on vacation when Jessica tagged me so I am going to leave it up in the air until I find someone who hasn't done it yet (I know...more procrastination).














